Third round of chemo

Friday, March 29th, I got the 6 hour cisplatin IV that started the third round. I had already decided not to ride for a week following it. The next day, my toes started aching, but since I was already on medication for that, it wasn’t nearly as severe as the last time. I felt pretty good until the next Wednesday, when exhaustion set in, but it wasn’t as severe as it was after the second round, and I went to work every day. The next Friday, April 4th, I got the gemcitabine IV. I also got my three month chest x-ray (it was clear). I was already feeling poorly, and felt bad enough after the treatment that I just went to bed for the rest of the day.

The next day was my 57th birthday. rbent, the local recumbent riders group, was having a ride and picnic nearby in Fort Worth. I had given up on trying to ride with them, but planned on joining them for the picnic. My wife was taking off work early to drive me there. Unknown to me, she was also planning on picking up a cake, and making a birthday party out of the picnic. None of those plans worked out; I felt so bad that I went back to bed late that morning, and went nowhere all day. Happy birthday, Bud.

I felt better the next day, but a bit feeble, so I settled for an easy day around the house. On Monday, I went to work, and planned on riding that evening, but the wind was howling, and I still felt a bit feeble, so I didn’t. Yesterday (Tuesday), my wife and I did 25 miles on the tandem, and I felt fine. My blood counts will bottom out this week, so I plan on just doing short, easy rides. Next week, I plan on slowly starting to ramp things up again, with some 60 mile club rides and such, this month. I probably won’t try a 200k brevet until May or June.

I’ll be visiting with my oncologist a week from Friday, which is when a fourth round would have started. He still wants me to come in for blood work, to see how I’m doing, and to discuss what’s next. I’ll be getting chest x-rays every three months and CT scans every six months.

Chemotherapy was pretty tough for me. I plainly don’t tolerate it as well as many people do. The only part of it I really aced was the gastro part. Most patients on the drugs I got suffer either serious constipation or diarrhea, and many people suffer both, at different times. I had neither. My taste buds are shot; there are so many favorite foods I can’t eat right now. But, my wonderful wife did such a great job coming up with and preparing healthy meals that I was always able to eat, lost no weight, and I think all of the fiber I always eat helped keep things moving through correctly.

Feeling better

My toes quit hurting by the weekend before last, and I finally started feeling better that Sunday evening. The best I can describe those 5 days I felt so bad is that I was so exhausted that I felt ill from it.

I didn’t ride again until last Saturday, when I did 25 miles. I felt some of the same “so exhausted I felt ill” feeling afterward. I rode 25 miles Monday, and didn’t feel bad afterward. I wanted to ride another afternoon or two this week, but the wind has just been more than I’ve been willing to battle.

My third round starts tomorrow. I’ve already decided not to ride for a week afterwards, to see if that helps keep the exhaustion away.

I’ve also done more research on adjuvant chemotherapy, trying to find out more about why some doctors use three rounds, and some four. It looks to me like, after three rounds, the toxicity of the drugs start to outweigh the benefit, so I’ve already decided to bail after three rounds. That means one 6 hour IV tomorrow, and one 2 hour IV next Friday, and I’m done.

Lung cancer chemo drugs, in the amount they’re given for lung cancer, are the most toxic of all; I’ve earned a whole new respect for those who survive 6 or more rounds. I’m not sure I would.

Feeling bad

I don’t seem to be having a very good week. My wife and I managed to do 25 miles on the tandem Tuesday, but by yesterday the aching in my toes (neuropathy from the chemo), which had started Sunday, got so bad I had to get a prescription of gabapentin for it. Today, I feel in a funk. I’m not sure if it’s the chemo or the gabapentin. Plus, my toes still ache, big time. And tomorrow is the gemcidabine chemo that happens on day 8 of the cycle, so things aren’t getting better, soon.

Maybe this would all be easier if I had had some actual symptoms from my disease first, but all I’ve had is the horrible surgery and the horrible chemo, and it is wearing on me. Some oncologists only use three rounds of chemo for adjuvant treatment, and it may be pretty difficult for me to sit still for that fourth. Even getting the third is an awful thought, right now.

Ride from home

Paul and Greg came over today and joined me on a 40 mile ride from home. I rode the Nimbus, and Paul wanted to try out Rose’s Stratus, but it ended up really being too short for him. He had to leave the seat much too upright and his tailbone was killing him by the end of the ride.

So, it was the ride of the gimps: “Tailbone” Paul (from riding too upright for 40 miles), “Mangled Foot” Greg, and “Chemo Kid” Bud. But it was a fun ride, and I really enjoyed being able to get out and do 40 miles, today. Thanks y’all, for not dropping me like a bad habit on the ride. Wait……… maybe that’s because I was the only one who knew where we were going….

Ride start

On 360

near Britton

Second round of chemo

The weather didn’t cooperate very well last week (snowed twice ……… in Texas, yet), so I only got 43 miles during the week. Friday was my long six hour cisplatin plus gemcidabine IV, and I was still pretty trashed the next day. Today, though, I got out and rode 40 miles with two friends (see the ride post following this). I wasn’t very strong on the hills, and was generally slow, but it was 40 miles, anyway.

Conferring with my chemo doctor before the treatment, he was amazed that I had ridden 63 miles last Saturday. Of course, non-riders are amazed at anyone doing 63 miles, so I guess it’s all relative. My blood counts were normal; I hadn’t lost any weight, so the doctor was happy. I’m tired after today’s ride, but really don’t feel bad at all. If it doesn’t rain tomorrow, I’ll probably have my wife on the tandem for 25 miles.

Between chemo riding

This was my no-treatment week, I felt ok, and the weather was mild (except for Tuesday), so it seemed like a good time to get some miles:

Monday = 25.3 miles
Wednesday = 25.2 miles
Thursday = 27.0 miles
Today (Sat) = 62.7 miles

I weigh 3 pounds less than I did on December 19th, the day before my lung surgery, so my weight is holding up alright so far.

The chemo drugs do take their toll, though. After today’s 62 mile FWBA Bicycles Inc club ride, I was as wiped out as I’ve ever been after a 200k. My red blood cell count is bound to be lower after the next round, so I don’t think I’d better do any more rides of this length until the chemo is over, and I have recovered. Round 2 starts next Friday.

FWBA Bicycles Inc route

First round of chemo, part 3

Wednesday, the day after my last post, I not only felt well enough to work all day, my wife and I did 25.3 miles on the tandem that evening. Unfortunately, the weather turned bad yesterday, and Friday I had the day 8 gemcitamine IV, and felt really bad the rest of the day.

I felt better yesterday, with only a major headache left over, so I took a pain pill, and went for a 25.1 mile ride. That’s 63 miles for the week, not too bad I think, since it’s February and I’m being hammered with chemo.

First round of chemo, second try

Friday, February 15th was my 22nd wedding anniversary. I celebrated the occasion by spending 6 hours hooked up to an IV, receiving chemo drugs. This time, they used gemcitabine and cisplatin. I must not have felt too bad when I got home, because I finished installing my new carbon fiber seat on my Roadster, then did a short test ride (nasty weather getting close, didn’t want to wait).

Saturday, the day after chemo, I still felt pretty good, but the weather was way too nasty to ride. Sunday was better weather, but I started to feel sick, and had to bail after just a 13 mile ride. Monday, I went to work, only to leave and come home after four hours. Today, I lasted just 30 minutes at work, and had to come home. I finally seem to have figured out that one of the two anti-nausea drugs they are giving me is making me sick. Sheesh……. not only are the chemo drugs bad, the anti-chemo drugs are bad.

First round of chemo

Well, my first attempt at chemotherapy did not go well. I had an allergic reaction to the first chemo drug they tried: Taxotere. 15 minutes after they added it to my IV, I started getting serious chest pain, broke out in a cold sweat, got dizzy and felt like I was going to pass out, and when my blood pressure dropped to 70 over 40, they quickly wheeled me to the emergency room, where I spent the rest of the day on saline solution to flush out the Taxotere. I go back next Friday, for another try with a different chemo cocktail. I can hardly wait.

Kennedale – Briaroaks ride

Peggy, Steve, Ken, and Rick joined me on my 53 mile Kennedale – Briaroaks route today. We left Sonora Park around 10:00 am. It had already started to warm up by then, and within a short while, it was truly a beautiful day for riding. This is mostly a quiet, scenic route (with a few crazy drivers thrown in at the beginning and end), and the roads were great, as was the company.

The only part of the ride I didn’t enjoy too much was the downhill rough curve I tried to take too fast at mile 33. I was on my left side and skidding, instantly. It’s the first time I’ve ever gone down at speed on the Corsa, and another reminder of the need to pay attention at all times when riding. I knew this curve was rough, and had always slowed down for it before, but just didn’t think this time.

I knew I had some serious road rash on my left butt cheek, but I had no idea how much of the rear of my tights was gone. They should never have let me go in the Subway after the ride…..lol. I have road rash all the way across my rear, so I must have finished the slide on more than just my left side. The road rash on my left forearm and thumb are less severe.

We ended up with 52.3 miles, at a 14.3 mph average, and did 2,355 feet of climbing. It was my first ride of more than 25 miles since my surgery. I’ve developed consistent exercise induced asthma since the surgery. It happens whenever I ride hard. I start my chemo next Friday, and I’m betting I’m the only patient in the chemo room with road rash from a bicycle crash.

Today’s route